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It’s summer time
and the living is lazy. So is your editor! It was really hard to stay
hunched over the keyboard during this warm weather but here, finally, is the
newsletter.
  The
big news, of course, is the smashing success achieved by the Rally for
Research. About 330 enthusiastic participants gathered for a spectacular day
of entertainment and education. You missed something special if you weren’t
able to join us. The team at Long Beach Memorial deserves a huge hand for
hosting the event, and for doing such a great job in organizing the details!
Everything went smoothly in spite of the huge crowd. An exceptionally large
group of physicians was present this year and, as always, was astounded and
uplifted by the sight of their happy patients checking out the vendor booths and
even dancing a step or two. DANCING? That’s right. The Tiep trio of
docs has all the magic of H.C. Anderson fiddlers. They set hands to clapping,
feet to tapping, and smiles on all who heard or saw them play. Our guest
speakers were wonderful, the vendors informative and generous, but it was the spirit
of group that made the day so special. What a privilege it was to be part of
this wonderful event!
Would you like
to see a partial listing of the latest donors to the Chair? They included those
by Kevin Hettich, Sharon O’Hara, Wm. & Shirley Grindrod, Kay Arndt,
Susan Hesser, Bonny Steele, RN, PhD, Bill Prentice, RN and Sara Casaburi
(in honor of Dr. Rich Casaburi), New Technology Publishing and Dr.
Brian Tiep.
Louise
Nett RN, Chad Therapeutics, CORF Licensing Services, Respironics, Metro Med,
Option One HME, Pharmacia Upjohn, Salter Labs, Apria Health Care, Sequor
Technologies, Inc. and Eli Lilly joined Dr. Petty’s Long Beach 500.
John
Boynton of Cockeysville, MD made another generous donation to the Chair,
which makes him a Sustaining Member (donations ranging from $1,000
to $5,000). John called to say that he and his wife have designated a
contribution to the Chair into their will. That makes you very special, John!
Additional donations from Dr. Tom Petty, Reta Long, and Dr.
Richard & Mary Casaburi to the Long Beach 500 also makes
them members of this special group. Joining them is PREP, the Mission
Community Hospital Patient Support Group,. They presented their check
during the Rally to a huge ovation from the crowd. Everyone was overwhelmed by
their outpouring of support, and good will. The unbelievable number of 99
members of PREP joined together to contribute enough to earn their group a
place in history. Their engraved name will be on the plaque under "Sustaining
Members"! It is wonderful people like you who spur us on to
work harder and to keep going on those days when things get tough. You can’t
know how uplifting it is to know how many there are who appreciate what the
Chair will mean to all those who suffer from respiratory disease. We thank you
for your support, emotional as well as financial. You are wonderful!
Edmund
Roth of New Britain, CT again made a very generous donation to the Chair
in honor of his sister, Mary Burns. This now puts Eddy in the very special
category of Premier Member, someone who has donated $5,000.00 or
more. Mary sends her very special thanks for this very wonderful
bequest.. Thank you, Eddy!!!
Freda Standeford of Westchester, CA thinks the Oxy-dog
is a great idea. She would love to communicate with some creative handicapped
person who would build her a cart. She doesn’t have a dog but would
like it to hold her e-cylinder and attach it to her Pugeot 12 speed bike. Is
there some one out there who already has one of these that they have made? If
so, let us know. We may get a cottage industry going here. Some of our bike
riding patients put their liquid oxygen in the basket in front of them.
However, that may be much too dangerous for an e-cylinder. If you had a spill
and broke the neck of that cylinder you might launch a guided missile! So, bring
on your ideas for an inexpensive cart for Freda.
Janice wrote to ask about using a harmonica as a
therapy to improve breathing techniques if you have emphysema. That is an
interesting question, Janice. Check out our web site for some good breathing
techniques, as well as a lot of other good information. A harmonica is a
fun way to practice breathing. So is
playing on a kazoo, which is a lot easier to learn. That is
because the player concentrates on breathing OUT. This will not produce
any permanent cure however, since emphysema causes a loss of elasticity in the
lung which can result in air trapping. It is important that people learn
to breathe out 2 or 3 times as long as they breathe in to prevent more air
trapping, to allow time to exhale, and to make room for that air that they
breathe in.
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